It has been quite some time since I have been on here. Emerson is currently in the hospital and I have nothing but time so I figured I would update everyone. Emerson was admitted to Cincinnati Children's Hospital last Tuesday for severe vomiting. Her cardiologist, Dr. Towbin, wanted her admitted right away to prevent dehydration, because Emerson has been vomiting for months now. Last January she had her g-tube and a nissan placed. The nissan was supposed to prevent vomiting, however, in June, Emmy finally vomited past her nissan. It has been all downhill from there. She is to the point where she is vomiting several times a day after each feeding.
We have been in the hospital for almost a week now and her doctors still don't know why she is having this problem. So far, she has had a repeat Upper GI, a chest x-ray, CT scan, an echocardiogram (luckily her heart isn't getting any worse), and numerous labs. Everything has come back normal. We've met with the GI team here, which are ranked in the top 3 in the country, and they are stumped. They have tried numerous formulas and volumes and haven't found a solution. Currently, Emerson is on a continuous feed. She seems to have the best luck with that, though she still vomits.
Tomorrow, Emerson is undergoing a 2nd Endoscopy with a 24 hour probe, an MRI, and a cardiac cath. Hopefully her doctors will be able to gather some valuable information that will lead them to the answer. I cannot watch my baby suffer any longer!!
Since I've been here, I heard about another Williams family suffering a horrific tragedy. My heart and thoughts go out to little Sophie and her family. Rest in peace, Little Angel!