Wednesday, October 21, 2009

Going Home Soon....

So we found out that we are probably going home either tomorrow or on Friday. Although the doctors still don't know why Emerson is vomiting, they have been able to greatly reduce her symptoms by putting her on a continuous feed, 24 ounces in 24 hours. This isn't ideal, and although we don't want to take Emerson home this way, it is our only option for now. Emerson's test couldn't be coordinated until next Wednesday. We will be coming back to Cincinnati then for Emmy's cardiac cath and endoscopy. Hopefully they find some valuable information that will lead them to a diagnosis!

If the doctors are unable to find anything with these tests, then unfortunately our only option will be to give Emerson a G-J tube, which is basically a feeding tube directly into her intestines so she won't be able to vomit. The only downside is that she would have to be on a continuous feed indefinitely.

I have a lot of faith in our cardiologist and am hoping that he will do everything in his power to figure out what is wrong with my little angle!1

Monday, October 19, 2009

It has been quite some time since I have been on here. Emerson is currently in the hospital and I have nothing but time so I figured I would update everyone. Emerson was admitted to Cincinnati Children's Hospital last Tuesday for severe vomiting. Her cardiologist, Dr. Towbin, wanted her admitted right away to prevent dehydration, because Emerson has been vomiting for months now. Last January she had her g-tube and a nissan placed. The nissan was supposed to prevent vomiting, however, in June, Emmy finally vomited past her nissan. It has been all downhill from there. She is to the point where she is vomiting several times a day after each feeding.

We have been in the hospital for almost a week now and her doctors still don't know why she is having this problem. So far, she has had a repeat Upper GI, a chest x-ray, CT scan, an echocardiogram (luckily her heart isn't getting any worse), and numerous labs. Everything has come back normal. We've met with the GI team here, which are ranked in the top 3 in the country, and they are stumped. They have tried numerous formulas and volumes and haven't found a solution. Currently, Emerson is on a continuous feed. She seems to have the best luck with that, though she still vomits.

Tomorrow, Emerson is undergoing a 2nd Endoscopy with a 24 hour probe, an MRI, and a cardiac cath. Hopefully her doctors will be able to gather some valuable information that will lead them to the answer. I cannot watch my baby suffer any longer!!

Since I've been here, I heard about another Williams family suffering a horrific tragedy. My heart and thoughts go out to little Sophie and her family. Rest in peace, Little Angel!

Who knew they made hospital gowns for babies?!?