My husband and I went to see my brother-in-law in his high school musical last week. He was the main character and was absolutely amazing. To stay on topic, my husband's cousin was there with her 5 month old son, who was born 2 weeks before Emerson. It literally brought tears to my eyes to see how much more advanced he was developmentally than Emmy. He was sitting up, holding his own head up, reaching for things, and laughing. Emerson does not do any of that. I could not help but be sad for Emerson, and us as parents.
This all being said, Emerson starts first steps tomorrow. She meets with an occupational therapist and will meet with a developmental therapist next week. I am very excited for her. I think it will be very good for her, and for me to learn how to work with her and help her grow and become stronger. I know changes won't happen overnight, but I believe with a lot of hard work and a positive attitude, she will succeed. I will post later and let everyone know how she does.
We are also following up with the surgeon who did Emerson's G-tube and nissen on Thursday. He will show me how to change her feeding tube (terrifying) and what to do if it gets pulled out. I am also excited because for the past 6 weeks (her healing period) she hasn't been able to have tummy time. I hope that the re-introduction of this into her routine will help her neck become stronger and hopefully be able to hold her head up on her own in a few months. Wish us luck!