I'm so terrible at updating this thing...but the good news is that there is not a whole lot to update because Emerson is doing very well.
Since her surgery, we have followed up with all her doctors and they all agree that she is doing much better. We followed up with a neurologist, since she suffered some brain damage during one of her incidents of cardiac arrest, and they said that they see no reason to follow her because she is doing very well. They did, however, refer her to a Pediatric Opthamologist to see if they can help with her poor little crossed-eyes, hehe...
On New Years Eve, she got a GJ Tube and has been doing very well with that...no vomiting, but still lots of retching and gagging. We are working on it though. She has also been sleeping better, WOOHOO!!!!
I'll try to update soon, she has some appointments at the end of the month, so I'll let everyone know how they turn out!!! xoxo